(2-2-22) Psychiatric medications were essential to my adult son’s recovery. If someone can control the symptoms without drugs, I am happy for them because medications are powerful and some have awful side effects. But during my nearly two decades of traveling the country and visiting other nations, I have not encountered a better alternative than medications for those with serious mental illnesses, especially schizophrenia. Recently, Stephen Shenfield, sent me an email explaining why he has fought to keep his daughter, Meili, off psychiatric medications. She does not have a mental illness. She is autistic, but Mr. Shenfield explained that programs for her often demanded that she be given psychiatric medications. I’d not considered how being a parent of an adult with autism might deal with medications so I am sharing a blog that he sent me.
Keeping Meili Off Psychiatric Drugs
By Stephen Shenfield
Our daughter Meili is diagnosed as autistic and has severe developmental disabilities. She is 35 years old, but mentally she remains a toddler of two. She has a happy disposition and often makes us laugh. She has caused us much trouble and given us much joy.
Meili’s ability to communicate is very limited. She talks a lot but most of it is echolalic (repeating all sorts of things she has heard). She really knows only a few dozen words, gestures, and stereotyped expressions. She can ask for her favorite foods, a drink, a bath, a ride in the car, or bubbles to catch or to hear music or go to the toilet. She cannot ask or answer a question. Repeated attempts to teach her names of body parts have failed. That is one reason why we want to keep her off psychiatric drugs. She would be unable to use words to communicate any resulting pain or discomfort, which would find an outlet in agitated behavior that care workers might not understand. A likely response would be to increase drug dosage, creating a potentially fatal vicious circle.