(10-13-21) I’ve always been frustrated by the never ending argument about which is better: community care or longer term care in state hospitals before discharge. What we need are accessible services that are appropriate to each individual’s need, whether that be in a community setting or more intensive hospital care.  Here’s an email that I received this week.

Dear Pete,

Two days ago, we had our first ‘on campus’ outside visit with our son at the Mental Health Institute in Independence, one of two state hospitals that we have in Iowa. He was excited, because it meant that we could bring him food and eat with him outdoors.  It was a two hour timeframe, so he also wanted to take us on a walk to show us around.  The residents go for walks on a pretty regular basis when the weather is good.

I’m writing because I recently had a chat with a candidate running for state office, and she said something that indicated she thought our Mental Health Institutes are terrible places. (I imagine this came from a significant amount of messaging from our prior Governor, Terry Branstad, prior to closing two of these facilities in 2015, in which he talked about them being old, run-down and providing substandard care. In addition, for quite some time, there has been a lot of discussion about how everyone is much better served, “in the community.”  It is not surprising that this candidate had a poor opinion of the MHI’s.)

I spoke with her to inform her differently, and that our son is currently receiving the best treatment that he has received since he first became sick in 2008, in a state hospital.  (One of only 2 remaining state hospitals here in Iowa – where we only have 64 beds for adults and 32 for children, so our ranking by the Treatment Advocacy Center is 51^st, dead last in the country.)

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(10-4-21) Does the public believe a defendant judged by a court to be criminally insane can ever recover?

A federal judge recently ruled that John Hinckley Jr., who tried to assassinate President Ronald Reagan four decades ago, can be freed from all remaining restrictions next June if he continues to follow the court’s rules and remains mentally stable.

I clearly remember March 30, 1981 when Hinckley wounded Reagan, police officer Thomas Delahanty, and Secret Service agent Tim McCarthy. He also critically wounded Press Secretary James Brady, who was permanently disabled in the shooting and died from his injuries 33 years later. I was a young reporter at The Washington Post and assigned to write a story about the .22 caliber handgun and ammunition that Hinckley used.

Public furor over his Not Guilty By Reason Of Insanity prompted calls to rewrite the standards used for such pleas, and news that Hinckley now will be released after forty years, ignited another fierce debate.

Judge Paul L. Friedman said Hinckley, now 66, has displayed no symptoms of active mental illness, no violent behavior and no interest in weapons since 1983.

“If he hadn’t tried to kill the president, he would have been unconditionally released a long, long, long time ago,” the judge said. “But everybody is comfortable now after all of the studies, all of the analysis and all of the interviews and all of the experience with Mr. Hinckley.”

One individual who is not “comfortable,” is President Reagan’s daughter, Patti Davis, who wrote an OP in The Washington Post opposing Hinckley’s freedom. She strongly criticizing Hinckley’s attorney, Barry Levine, who she wrote: “worked the system from the beginning and, finding a judge who was sympathetic to them, made this day inevitable.”

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(10-1-21) Exciting and Important News!

A news service that focuses entirely on mental health went online this week. It’s called MindSite News: Shining A Light On Mental Health.

Its first cover story, The Lockdown Inside the Lockdown, exposes how COVID and isolation are further traumatizing young people who are incarcerated.

MindSite News is the brain child of Rob Waters, the news service’s founding editor, journalist Diana Hembree, and Dr. Thomas Insel, the former director of the National Institute of Mental Health, who was instrumental in getting it launched. The news services’s ambitious goal is best explained by its mission statement:

“MindSite News is a new nonprofit, nonpartisan digital journalism organization dedicated to reporting on mental health in America, exposing rampant policy failures and spotlighting efforts to solve them. We seek to create and sustain a sense of national urgency about the workings and failings of the U.S. mental health system and to impact that system through our reporting, making it more equitable, effective, transparent and humane in its care for individuals and families struggling with mental illness.”

MindSite News posts stories about mental illness under six categories: Investigations, Peer Hub, Essays and Interviews, Arts and Culture, Solutions Lab, and Policy Tracker.

Under Peer Hub, you’ll find a story about a Vietnamese therapist who is using his own experiences as a refugee to help Afghans arriving in our country. If you click on Solutions Lab, you’ll find a story that asks if having a guarantee income would reduce mental illnesses in America. There’s also a profile: Plagued in her youth by anxiety and panic attacks, a California educator now works to curb student suicide. Under Policy Tracker you’ll find a story about the coming 9-8-8 Crisis Hotline that supposedly will greatly improve local services.

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(9-24-21) A frustrated Virginia sheriff’s deputy recently threatened to arrest employees at a state mental hospital because they balked at admitting an individual who was in the midst of a mental health crisis. The deputy had arrived without first having the patient cleared by a medical doctor for transport and without any medical records, including whether the patient had been tested for COVID.

The deputy’s action is an example of the latest sad twist in Virginia’s ongoing mental health crisis.

With private hospitals turning away patients and state mental hospitals lacking capacity, law enforcement officers are stuck dealing with patients who have no place to go.

This is wrong, but so far the state’s leaders have failed to find a way to resolve a lack of psychiatric services and hospital beds.Click to continue…

(9-21-21) This is the second two of  Glenn Slaby’s account (part one here) of his years seeking help for the symptoms of his mental illness, the toil it has taken, the love of those who have stuck with him, and his ongoing mission to help others. As always, the views expressed in this guest post are those of the author.

CROOKED ROADS: Part Two 

By Glenn Slaby

Diagnosis: Obsessive Compulsive Disorder (OCD) and anxiety and some depression (the new meds eliminated this). Being discharged meant continuation of the same continuous dread, uncertainty. OCD can be a complex behavior, not just commonly referenced with fear of germs and diseases, but continual overthinking, with huge waves a doubts about everything and anything, even creating a lack of trust in those nearest. A blemish, a mark, a mole, cancer? Why is she late from work? The boss needs to see you? A friend hasn’t called? Did I prepare dinner properly? The barbecue, is everything cooked?  The gas, is it on, did I lock the door? did I….

The correct diagnosis did not place life on auto-correct, resuming its original path.

My brain needed to be retaught, confidence re-built, accepting the loss path, finding a new road – searching for a purpose, becoming a better husband, father. I had to accept limits, search for new capabilities, abilities, goals. And I prayed, scared of the future, for the future. Looking back, I see the slow daily progress, recovery and pain.

 After discharge, the Partial Program, five days a week in an outpatient. And I did sleep. But the fear continued. Home coming isn’t a relief. Discharge brought fear due to prior experiences, on a path, removed from a ‘sanctuary’ facing a world disjointed, noisy, seemingly uncaring. Nights brought fear, insecurity. I slept on the couch, away from wife and son – not knowing what night’s terrors will arise. Days brought daily chores, prayer, clock watching and waiting for the next crash, but also wondering, hoping. A slow return to some normalcy. Home brought what others, too many, do not have – stability, family, church, friends.

The next stage, the Continuing Day Treatment (CDT), a friendly atmosphere, caring professionals, etc. and decision, to avoid the final choice and face the unknown future, a new reality. They succeeded, I succeeded. I remember their names.

With stability through these various therapeutic programs, the body adjusted to new routines. The mind had somewhat adjusted to future’s mystery. My spirit, faith and soul’s confidence returned. A deeper faith was sought, to grow, dig deeper and find the Testament’s hidden treasures. Months passed, fears were accepted, lessened, slowly, stubbornly.. Confidence grew. Sounds simples. It wasn’t, still isn’t. Slips occurred, but trust grew. The old adage “Time will tell” proved as correct as the diagnosis. A painful passage of time. The pain of therapy. A passage of healing never complete.

Healing isn’t a cure in the general sense. The brain, the mind are not similar, but both fragile, complex, influenced in a myriad of prompts, emotions. Each step, a “mental boot camp” of challenges, pain, sometimes agony – changing, ‘reprograming’ the self. And the brain, creation’s most complex gift, is far from understood.

None of this was my, fault. It was just what it was. I had to accept.

(I wonder if hospitals, anyone, maintain data on discharge statistics, such as rate of medicinal adjustments, rate of readmissions, diagnosis, diagnostic changes, etc.?  I doubt it.)

 Trauma exposed.

After CDT, individual out-patient therapy discovered conditions relating to Attention Deficit hyper-activity Disorder (ADHD) and Post Traumatic Stress Disorder (PTSD) – layers like an onion, slowly uncomfortably peeled, away. A different type of pain. Has the center been reached? Is there a center besides the soul?

The causes – genetic (family history with drinking and suicide), trauma and social upbringing. I had, have all three – like so many. There’s no one to blame. It’s there, it happened. Move on, slowly, with difficulty and pain, working through distress.

I am lucky.

Through hell stood my wife, family, beloved friends and my priest. No one gave a damn about the stigma. Everyone gave a damn about my well-being and fighting the system.

I am in the minority.

My PTSD, from a medical procedure when in kindergarten. Trauma, affecting me through life in too many aspects. A switch is turned, volts of electricity spark through the brain. It’s like standing on the Great Plains in the middle of a lightning storm with no place to hide.

Waiting, picking up, absorbing family’s fear, dread, anxieties. A child’s mind, sitting in a waiting room, in fear of what awaits. None of this would have happened, affecting everything. Was it days, hours? I should have hid all that blood better. I have no recall, how I got there, the passage of time, – just sitting in the waiting room. How long was it? What will happen, behind the door?  He says, pull down your… This won’t hurt.  It did, I screamed.

I hope to reach, “The concern of the flesh is death, but the concern of the flesh and spirit is life and piece.” Romans 8, 6

For an issue that may have gone away on its own.

How can one wait? Days of thoughts compounded by mind’s other defects. Awaiting the results, day after day. Making the appointment, waiting for the day. Sitting in the waiting room.  The unknown, behind then door.  Then specialist after specialist, appointment after appointment, probing, the next visit, the next doctor, next test, invasive or not, it doesn’t matter.  There also have been too many tests, too many false positives. The last suggestion of a non-invasive exam was more than the mind could handle. I was one phone call away from the final choice. Doesn’t anyone understand mind’s limits? I feel it in others who don’t suffer. I see it many, the ones I love. I’m torn apart. How does one live? Can I let go, Let God? What can the mind withstand?

So I live in the moment’s freedom and uncertainty, like all too some extent, along with the emotional pain I cause in others.

However, with a deeper faith. Letting go, with trust, daily, seeing what others may not see, the value of a day, a friend the limits of life, the greatness of gratitude, of faith, of what is promised by The “I Am.” I try.

Can’t wait till I finish this article, so I can escape from this inner-self and enjoy moments of life.

Group therapy, coinciding with individual therapy worked, learning skills, learning especially what worked for another would not work for me. I learned, skills for OCD may not be applicable for PTSD. ADHD, anxiety. And trying when to use a particular skill for which issue, problem.

Every therapist has different styles, methods, techniques. With two very good therapists one proceeding the other, they focused different methods for growth. Success has been difficult, learning to switch. I have learned from both. But…when, not if, this current therapist leaves.

The ADHD, the mind distracted, more creative, seeing what others don’t, more misunderstandings, difficulty reading, not learning like others, inability to slow down. There’s my hurried speech pattern, moments of teeth grinding and jaw clenching. The inability to focus as well as others, on others and understanding what others discern so well.  To be still and know, the mind fighting itself. Even in Church, through the Gospel, homily, the Consecration.

I mustn’t leave the kitchen when cooking. I forget my tea sitting, getting cold. Its midnight, the mind is finally silent of all internal noises. Its 1:00am, already? Finally at peace and need go frustratingly, needing to bed.  Projects started, not completed, thoughts the same, except when I am writing, doing jigsaw puzzles. Websites, their graphics, the formats, the overwhelming colors, understood with great difficulty.

Only on the pain of the trauma, does the mind focus.

My cross. I long for fleeting times of enjoyment of doing, when I finish this article.

ADHD, anxiety, trauma, OCD compounds life, feeding off each. Even in sleep. The dreams, clear, vivid, sometimes uncomfortable. Images of being attacked, fighting off the past, swinging nearly hitting my wife, and twice did. Fortunately rare, but still…   At least, in my teenage years, fear created by my OCD kept me away from alcohol and drugs. The self-medication, so prevalent, for millions, so misunderstood. There’s the internal, the questioning, the secondary thoughts, the doubts of what to do, say, think. Every moment, awake.  Every action questioned. And the pain I cause others, those closest. So I live, trying to help, be more than what I lost.

Obstacles from society.

The stigma, insurance coverage, drug costs, lack of parity – so much to be done. We are still here – despite what roadblocks are thrown in our way. Social Security disability, SSI for others, programs, for many, what many ignorantly call welfare. Some tell you, why you can’t change, just change. We should tell them, try writing, and do everything, with your other hand.

I am lucky. An education and a prior career, (former accountant, an MBA in Management). This illness bringing an end to old dreams, careers,  brought something greater.  Now, a new purpose. An MFA in Creative Writing and working at the second psychiatric hospital serving, contributing. Resulting from love, kindness and skills of many. I’m the minority. Too many suffering from a disease that is NOT of their making.

“All We Have to Decide is What To Do With the Time That is Given Us” Lord of the Rings. Tolkien

What was the meaning? Did I create my own meaning through faith? The Lord brought me through dark times. Future’s path still scary, at times.

We all have our own horror stories.

“It is not our part to master all the tides of the world, but to do what is in us for the succor of those years wherein we are set, uprooting the evil in the fields that we know, so that those who live after may have clean earth to till. What weather they shall have is not ours to rule.” Lord of the Rings. Tolkien

ABOUT THE AUTHOR: Glenn Slaby has been married, to the immense patience and credit of his wife, for 31 years now. He currently works at St. Vincent’s Hospital, which has so well served him. Recently passing all the required tests to become a Peer Specialists, he can now work even more closely with others suffering from mental illness. Today he writes monthly for the online publication, The Catholic Stand and periodically for Spotlight on Recovery and seeks other outlets. Weekly therapy continues at the above hospital as does Spiritual Direction on monthly basis through a Salesian Brother. His website displaying earlier articles is www.glennslaby.com.

(9-20-21) Today I welcome a guest blog by Glenn Slaby, who describes in this powerful essay, his life living with a serious mental illness. As always, the views expressed are solely those of the writer.

CROOKED ROADS : Part One

By Glenn Slaby

Sometimes, I just can’t believe I have mental illnesses. Four, the latest count. Some genetic, some from life. I accept, not as a degradation, but a cross. Our culture sometimes does not accept this type of cross. My mind is so different in the way I think, perceive, feel and act, like in a box. This is my life, making it purpose from a burden, a trial to be borne to help others. I am different and wonder, should I care if my inflictions are visible.

Thirty-five years mind different. Then, twelve years misdiagnosed. Twenty learning, struggling, developing into something new. How many acts, decisions made within this frame? How many the right choices? What of the long-term effects of being misdiagnosed for so long? The difficulty of being a husband, father when the brain doesn’t work when it should.  Why?  I’m still one of the lucky ones. 

I hope, believe, “I consider that the sufferings of this present time are as noting compared with the glory to be revealed for us.” Romans 8, 18*

“Sorry there is nothing we can do for you.” The doctor and therapist, their words seemed so easily spoken. Did they understand the pain inflicted with those words?  And a knife went through my heart, my wife’s.

We stared, dumbstruck. Third in-patient stay in as many months. Unbeknownst, two more to come. Seems a long time ago, yet freshly lies on the surface of mind’s memory, Scars mostly healed – the discernible ones.  Diagnosis, treatment, how different today than in ’04, hopefully. Twelve years prior, the year of my son’s birth, some attributes led to the incorrect bi-polar disorder conclusion. I wonder, ask why?

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