Everything Here Is Beautiful: A Unique Novel About Sisters, Immigrants & Mental Illness

(3-26-18) Ever since Bebe Moore Campbell’s death in 2006, the mental health community has  been desperately in need of a skilled novelist who can write a captivating story that offers readers a realistic portrait of mental illness while educating and entertaining them.

Such a novelist and a book are needed because novels reach a wide swath of Americans who would not be the slightest bit interested mental illnesses. Great novels can be timeless and speak to multiple generations.

The search has ended.

Mira T. Lee and her debut novel, Everything Here Is Beautiful, hits all the right marks.

First a word about Bebe Moore Campbell. Her first children’s book, Sometimes My Mommy Gets Angry, established her as a creative and credible writer about mental illness. It won the National Alliance on Mental Illness (NAMI) Outstanding Literature Award for 2003. As the title suggests, her children’s book is about a little girl who has to cope with her mentally ill mother.

A key reason why Ms. Campbell could write so authentically was because she had mental illness in her family, a topic she further explored in her fictional 72 Hour Hold. She was well-known and well-respected in the NAMI community, having helped found the NAMI-Inglewood chapter.

I greatly admired Ms. Campbell’s writing, courage, frankness and willingness to help others – including me. Before brain cancer ended her life, she wrote a complimentary blurb for the cover of my book CRAZY: A Father’s Search Through America’s Mental Health Madness.

To me, her’s were big shoes to fill. It isn’t easy to write about mental illness in fiction, especially if a seriously mentally ill character and the overall narrative does not fit nicely with the stereotypical, happy, redemptive ending that publishers and readers often prefer.

If writing about mental illness realistically isn’t enough of a challenge, try writing a book that doesn’t feature white, middle-class Americans as its main characters, but focuses on minorities and deals with such issues as immigration and how different cultures view mental disorders. Now consider that you have never before published a novel.

Mira T. Lee, who lives in Cambridge, Massachusetts, not only takes on all of these challenges, but conquers each with aplomb in Everything Here Is Beautiful. (Yes, I am repeating the title, because I don’t want you to forget it.)

Click to continue…

Frustrated Mother Outlines Son’s Mental Illness For Commitment Judge. When Will Our Leaders Do Something To End Our Children’s Suffering?

(3-20-18) A mother’s testimony to be delivered today (Wednesday) before a judge who will decide if her 22 year-old seriously mentally ill son will be hospitalized. This plea tells much about our broken system and, quite frankly, makes me angry. This letter is representative of what happens every week in our country. We’ve got to do better. Lives are being destroyed.)

Your honor,

In one of my hundreds of calls to crisis during the past three years, a clinician asked me, “What is it that you want?” My answer was clear:

I want my son to receive treatment in a safe environment, under the care of a qualified physician, with sophisticated medication management and therapy and enough time to determine whether the treatment is working.

The clinician laughed and said flatly, “You will never get that.”

Sadly, she has been correct.

Click to continue…

Forced Commitment Might Have Stopped School Shooting, AP reports. Also, A Father Inside View Of A Backward System

(3-19-18)  During the weekend, the Associated Press reported that authorities in Parkland, Florida,  sought to involuntarily commit the alleged school shooter there several times more than a year before he opened fire, killing 17 with an assault rifle and wounding 17 more . A commitment under the law would have made it more difficult, if not impossible, for Nikolas Cruz to obtain a gun legally. 

A New York Times OP ED by advocate Normal J. Ornstein, whom I greatly admire, specifically discusses what happened in his family in Florida after Ornstein used the Baker Act to hospitalize his son. 

Meanwhile, The Washington Post published a front page story entitled, “I’m constantly asking: Why? When mass shootings end, the painful wait for answers begins. Earlier in that same week, D. J. Jaffe, author of Insane Consequences, and no stranger to causing controversy, published an Op Ed in the Post under the title: “Don’t deny the link between serious mental illness and violence.”  Jaffe wrote that untreated Americans with serious mental illnesses are, in fact, more dangerous, an unpopular view that others have challenged. He also repeated his call for six changes: 1. more hospital beds, 2. not using dangerousness as the primary criteria for involuntary commitment, 3. adoption and better funding for Assisted Outpatient Treatment, 4. modifying HIPAA so that parents and other caregivers are kept informed by medical providers, 5. using “red flag” orders to remove firearms from persons with mental illnesses, and 6. reining in the federally funded, state administered Protection and Advocacy groups (PAIMI), that often fight to get individuals out of hospitals arguably before they are ready. 

Ever since the school shooting in Parkland, Fla., law enforcement and other officials have been calling for changes in the Baker Act, a Florida law that allows involuntary commitment for 72 hours of people who are an imminent danger to themselves or others. If the Baker Act had been easier to deploy, they think, Nikolas Cruz, the accused shooter, would have been taken and treated before his horrible act.

However this law may be reformed, it will never be able to get people with serious mental illness the treatment they need.

I know something about the Baker Act. About halfway through my son Matthew’s decade-long struggle with serious mental illness, my wife and I invoked the Baker Act against him.

This kind, brilliant, thoughtful young man, who experienced the sudden onset of mental illness at age 24, was living in a small condominium we owned near Sarasota, Fla. One day the manager called us with alarming allegations about his behavior and insisted that Matthew was in immediate danger.

In a panic, we flew to Sarasota, went to the courthouse and filled out the forms to invoke the Baker Act. It was surprisingly easy.

When we got to the condo, Matthew was already gone.

Click to continue…

John Oliver Uses Humor To Focus Attention On The Need For Mental Health Reform

(3-16-18) From My Files Friday: I posted this segment about the need for mental health reform by John Oliver three years ago and it remains one of the best. 

“Anosognosia Is Clearly Biological In Origin” Dr. E. Fuller Torrey Argues That Science Proves It

 

(3-13-18) An article entitled The Perplexing Semantics of Anosognosia: Why an obvious phenomena has sparked controversy, written by Dr. Dinah Miller, co-author of COMMITTED: The Battle Over Involuntary Psychiatric Care,  drew strong reactions yesterday after I posted it.  Among them was this reply from Dr. E. Fuller Torrey, who has been described by The Washington Post as “perhaps the most famous psychiatrist in America.”

By E. Fuller Torrey, M.D.

Dear Pete,

Dr. Miller questions the appropriateness of using the term “anosognosia” to describe the lack of awareness of illness in individuals with schizophrenia or other psychosis.  In The Study of Anosognosia (G.P. Prigatano, ed., Oxford University Press, 2010) anosognosia is defined as “a complete or partial lack of awareness of different neurological…and/or cognitive dysfunctions” which would appear to cover psychoses. She contacted the late Dr. Oliver Sacks who in fact had given an eloquent description of anosognosia in The Man Who Mistook His Wife for a Hat: 

“It is not only difficult, it is impossible for patients with certain right-hemisphere syndromes to know their own problems – a peculiar and specific ‘anosognosia,’ as Babinski called it. And it is singularly difficult, for even the most sensitive observer, to picture the inner state; the ‘situation’ of such patients, for this is almost unimaginably remote from anything he himself has ever known.”

Dr. Miller is also incorrect in saying that “we know nothing of the fundamental neural dysfunction” for individuals with anosognosia.  Studies of stroke patients have demonstrated that the inferior parietal lobule plays a critical role, especially on the right side. Since 1992, there have been 25 studies comparing the brains of individuals with schizophrenia with and without anosognosia. In all but three studies, significant differences are reported in one or more anatomical structures. Since anosognosia involves a broad brain network concerned with self-awareness, a variety of anatomical structures are involved, especially the anterior insula, anterior cingulate cortex, medial frontal cortex, and inferior parietal cortex. Three of the positive studies included individuals with schizophrenia who had never been treated with medications, discounting the likelihood that the observed brain changes resulted from treatment.

Click to continue…

Anosognosia: Is It An Accurate Description Of Individuals Who Don’t Believe They Have A Mental Illness?

There’s no controversy here.  People with psychotic disorders sometimes don’t know they are suffering from a mental illness, and there really is nothing to argue about.  And yet, the word “anosognosia”—meaning the patient is unable to see that he is ill—is a charged word.

Why is that?  Let me talk a little about the history of this word and the political meaning it has taken on.

Anosognosia is a term that was coined in 1914 by a Hungarian neurologist named Joseph Babinsky.  Babinsky noticed that sometimes after a stroke, people are unaware of their deficits.  This is presumed to be a result of pathophysiologic changes in the brain, and not the psychological defense mechanism of denial.  There is not a precise anatomical finding that predicts anosognosia: you can’t look a patient with anosognosia and say, “ah, the MRI will show a lesion in X area of the brain.” Though certainly, some deficits are more likely to include anosognosia than others.

Click to continue…