(4-23-24) My PET scan shows that my Stage Four Lung Cancer is in REMISSION, which is defined as a “decrease or disappearance of signs of cancer.” I am ecstatic and feel as if my life has been given back to me.

Dr. Alexander Spira, my oncologist at Virginia Cancer Specialists, told Patti and me the good news yesterday, and we are overjoyed. He said my targeted therapy is working so well that the tumors in my right lung aren’t noticeable on my PET scan. This makes me wonder if I need to reconsider my journalistic skepticism about miracles. When my cancer was discovered in February by an ER doctor, it was suggested that I had six months to live.

The cancer is still there and it could emerge at any time, but it’s unlikely it will grow anytime soon while I continue taking Alecensa, a chemo-medication specifically designed to fight non-small-cell lung cancer that has spread. I will be taking 8 pills a day for life and every other month, undergoing scans and blood work.

Click to continue…

Photo courtesy of Peg’s Foundation, from The Morgan Impact Awards, Pete and Patti, 2021

(4-3-24) Since learning in February that I have Stage 4 lung cancer, I have undergone a series of scans and tests. I can now share some hopeful news.

My cancer is being treated with targeted therapy, which only can be done in a small percentage of cases. I am taking a medication (8 pills per day) specifically designed to target molecules that the cancer needs to spread and survive. While my cancer can’t be cured, it can be treated and targeted therapy is much less caustic on my body than chemotherapy.

Individuals with my cancer diagnosis who receive targeted therapy routinely survive three to four years, with some surviving substantially longer.  Clearly, this is much better than the six months sentence that was suggested in the ER.

I am 72 years old and hope to be among those who survive “substantially longer,” but this time line has certainly changed how I now look at my life.

Click to continue…

(3-3-24) I want to thank all of you who read my blog – A New Journey: I Have Stage 4 Lung Cancer – yesterday and offered me your support, prayers, and best wishes.

Writer Hal Lindsey once wrote:

 “Man can live about forty days without food, about three days without water, about eight minutes without air…but only for one second without hope.”

Your words offered me hope and touched my heart. Life gives us many unexpected challenges, as all of us with a loved one with a mental illness know. My good friend, Walt Harrington, once told me: “No one gets through life without getting beaten up.”

That’s true, but those punches are much easier to take when you have people who voluntarily share them with you by genuinely caring.

I will be forever joyful and appreciative because you reached out to me during this uncertain time in my life.

Hope changes lives.

 

 

 

(3-2-24) I was staring at the wall clock in the INOVA Fair Oaks (Va.) Hospital when the emergency room doctor spoke but I cannot tell you now what time it was. I only know that it was at that single moment when my entire life changed.

Just before Christmas, I’d fallen while hiking in the Shenandoah, breaking three ribs. Seven weeks later, I began gulping for breath whenever I walked upstairs. An x-ray revealed fluid in my right lung, which caused my wife, Patti and me to drive to the ER.

The fluid needed to be drained, the first ER doctor explained, while ordering a CT scan. Patti was nervous. “What’s taking so long?” she asked. The doctor finally returned. “We have a problem. There are three masses in your right lung.” Masses? My first reaction: “They must be from my hiking accident.” He replied: “They are highly suspicious.”

A second ER doctor arrived to schedule the draining of fluid and admit me into the hospital. “Do you understand what you are dealing with?” he asked. I blamed my fall. He said, “Cancer. Lung Cancer.” Patti and I stared at each other. Stunned! The doctor continued typing into a computer without making eye contact. Not a hint of empathy or emotion. “Lung Cancer that’s metastasized is Stage Four,” he said in a voice no different from when someone orders a pizza.

Patti urged me: “Don’t check the Internet.” I did. In less than an hour, I’d gone from being a hiking fall victim to having a fatal lung disease. “This can’t be happening,” I said out loud. Not to me.

Click to continue…

(12-15-23) Pat Milam was desperate. He knew his adult son, Matthew, was planning on killing himself. But doctors at the Ochsner Hospital/Clinic where his hospitalized son was being treated for bipolar disorder and paranoid sczhophrenia weren’t listening.

The more Pat tried to sound alarms, the more doctors at the large medical center on the outskirts of New Orleans, La., balked. One said he didn’t want to “upset” Matthew by sharing his father’s worries. But mostly, Pat and his wife, Debbie, were told the federal Health Insurance Portability and Accountability Act (HIPAA) prevented the hospital from discussing Matthew’s case.

“I told them, you don’t need to tell me a damn thing about my son,” Pat recalled in a telephone call. “I know my son. You need to let me tell you about what is happening on the other side” – at home.

“I took photos of Matthew standing in a thunderstorm begging God to strike him down by lightening,” Pat explained, hoping to substantiate his fears. “I got a notarized affidavit from a co-worker who described how Matthew had showed him a noose and said he was going to use it to kill himself. I documented how Matthew had dug his own grave in our backyard and had slashed his throat.” Pat went so far as to get a letter a psychiatrist not affiliated with Ochsner stating that Pat was not an “alarmist” but had reasons to be worried.

Pat hand-delivered all of those documents to Ochsner. Despite this, he was told that Matthew would be discharged. Doctors said he was stable. Pat contacted the CEO of Ochsner and begged him to intervene – as one parent to another. No one listened.

Eight days after being sent home, Matthew was dead at age 24.

Grieving, heartbroken and angry, Pat sued Ochsner Medical Institutions, one of the largest providers in the South.  It was a David vs Goliath challenge – Ochsner is a four billion dollar operation with 30,000 employees.

Now, twelve years after Matthew’s suicide and despite repeated attempts by Ochsner lawyers to drag out the couple’s civil suit, depose them with embarrassing questions about their personal lives, and drive up attorney bills, Pat and Debbie reached a settlement.

Click to continue…

(11-7-23) Gabe Howard is no stranger to readers of this blog. He’s a popular speaker, host of Inside Mental Health: A Healthline Media Podcast, and author of Mental Illness is an Asshole.

For the first time since Gabe’s bipolar disorder surfaced, his mother, Susan Howard, talked openly about her son’s mental health on the Inside Bipolar Podcast on PsychCentral.

Gabe wasn’t present when his mother was interviewed by Dr. Nicole Washington, Gabe’s co-host on the podcast,

Many of you are parents of adult children with mental illnesses. I’ll be curious if you relate to what Ms. Howard says about her son.

Thanks Ms. Howard and Gabe for putting a human face on bipolar disorder.